Tuesday, February 23, 2010

I Need a Fix...


It’s been many weeks, far more than I would like to see since I had it. My miracle drug, the one that takes the pain away, and leaves me bright eyed and bushy tailed. Right now I am a huddled mess, my hair feels like it is falling out, and sleep eludes me. War cries emanate from my room like some medieval warrior falling upon a pike, and the quality of my work suffers. This shit has got to stop.

While I am sure this will be talked about at length over the existence of this blog, I haven’t spoken about a subject that I have become pretty intimate with: Ankylosing spondylitis. I have been diagnosed with a degenerative spinal condition, in which my immune system attacks the joints of the spine, slowly causing them to fuse. Over a long enough time, each vertebrae will fuse into the next, taking the flexibility out of my back. In the short term, it causes inflammation between each joint, which results in chronic and quite debilitating pain.

The one counter that I have found to alleviate this pain costs in the neighborhood of $1500 to $1700 dollars per month, and is an injection called Enbrel. Naturally, the disease has made me uninsurable, which leads me to the shortage I am now experiencing.

Forgive me readers, I do not mean to complain, but these issues have weighed on my mind recently, and I thought I would take a moment to enlighten everyone about it. The disease itself is an intensely personal struggle, and for the most part, I keep it private. My journals overflow with details about these struggles, but with how constant the pain has been in recent weeks, I simply wanted to get it in the open.

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